Went to St Thomas's hospital today to get by chemo pump changed and see the dietion. It took much longer than expected. Firstly the chemo drugs were not ready, and when they did get them, they only got one pump, I need another pump to take home. So we had to wait yet again. We got there at 12:20 and didn't leave till 4pm. It normally only takes 1 hour in total.
Also mentioned to the docs that I was feeling pain when I eat. We suggested that I should cut down on some of the drugs that can cause irritation. Seems like the doctors are following our suggestions rather than giving advice from experience. You would think that they would have had patients with similar problems in the past and know how to solve the issues.
Anyway, I feel better now that I've let some steam off....thanks for reading through it all.
My weight is still dropping.
Thursday, May 31, 2007
Tuesday, May 29, 2007
2 and a bit weeks to go
Can't wait for this all to end. Really starting to get fed up with needles being jabbbed in to me ever 3 days. Also the sickness is getting a little worse since I came down on my meds. Have decided to up the meds again, just doesn't feel like I'm improving very quickly. I suppose I need to be more patient and I only have just over 2 weeks to go.
I really want to get back out there and meet up with everyone. I've also seen quite q few jobs I'm interested in, but obviously can't interview for them in my current condition. I'm hoping there will be jobs out there in a few months time.
Summer is truely here, even if it rains a little. I want to be out in Convent Garden sipping on some wine and enjoying the sun. I had my first whisky in months a couple of nights ago, it went down well so may be I can start on the booze again soon.
Alyssa has changed so much in the last month. She picks up all sorts of words and can count to 10 except she sometimes misses out 9. At least I have the strength to play with her now. Not much else to say really. Oh, have started to watch Primeval and about to start watching Boston Legal, both look good so far.
Weight: 9stone 11lbs
Sickness : 4/10
Energy: 6/10
I really want to get back out there and meet up with everyone. I've also seen quite q few jobs I'm interested in, but obviously can't interview for them in my current condition. I'm hoping there will be jobs out there in a few months time.
Summer is truely here, even if it rains a little. I want to be out in Convent Garden sipping on some wine and enjoying the sun. I had my first whisky in months a couple of nights ago, it went down well so may be I can start on the booze again soon.
Alyssa has changed so much in the last month. She picks up all sorts of words and can count to 10 except she sometimes misses out 9. At least I have the strength to play with her now. Not much else to say really. Oh, have started to watch Primeval and about to start watching Boston Legal, both look good so far.
Weight: 9stone 11lbs
Sickness : 4/10
Energy: 6/10
Sunday, May 20, 2007
Exhausted but met Ian Botham
The last few days have been really hard. I just do not have any energy and I'm not sure when it is going to come back. I realise that the Radio is still having an effect on me but I was hoping that would wear off by now. Also losing a little weight which is not good.
Whilst walking around Bluewater, Shirin noticed that Ian Botham was signing copies of his new book. We managed to jump the queue and get a copy signed. I'm not that excited about it but there you go.
Sorry there isn't anything more exciting to say, except I only have 3.5 weeks of Chemo left!
Whilst walking around Bluewater, Shirin noticed that Ian Botham was signing copies of his new book. We managed to jump the queue and get a copy signed. I'm not that excited about it but there you go.
Sorry there isn't anything more exciting to say, except I only have 3.5 weeks of Chemo left!
Tuesday, May 15, 2007
Bored
It has been a while since I have written my blog. The main reason being that not much has been happening. I'm still exhausted from the Radio treatment and spend most of my day in bed. The dizzy spells are getting better though, only had one today. I'm finding eating more and more difficult, which is not what I was expecting. I would have thought that now the Radio has stopped may by my digestion would improve. Turns out I feel slightly more sick every day. It could be due to my building up a tolerance to the anti sickness drugs or it could be that I'm pushing my eating boundaries a little. In any case, I wish I didn't feel so sick after eating.
Has anyone got any suggestions for programs to download that are worth watching? I've almost finished psych. I'm also watching Heros and 24. Any others I should consider?
Eating: lots but feeling sick
Sickness : 4/10
Energy : 4/10
Has anyone got any suggestions for programs to download that are worth watching? I've almost finished psych. I'm also watching Heros and 24. Any others I should consider?
Eating: lots but feeling sick
Sickness : 4/10
Energy : 4/10
Monday, May 07, 2007
Not long to go
Only two more sessions of radio and I'm done! So from Wednesday I should be back home and recovering. I still have 5 weeks of Chemo to go, but it can't be as bad as the radio treatment.
Had a nightmare journey home from hospital on Friday, the traffic was terrible. Ended up stopping off at Rodney and Reenahs.
My energy levels are very low, can barely get out of bed. Hopefully when the radio stops my energy will return.
Many thanks for the offer of a flight, I'll definately take you up on that, although it may be a couple of months before I can fly. Kevin, you might want to plan the trip to Sweden without me and I'll join if I can.
The district nurse is supposed to visit today to change my sub cut pump. It's a needle they place under the skin to pump anti sickness drugs. It works really well for me. Sorry there is not anything exciting to write about, not much happens when you're lying in bed all day. I would recommend this TV series I've started watching called Pysch, it quite funny.
Energy : 1/10
Sickness : 2/10
Had a nightmare journey home from hospital on Friday, the traffic was terrible. Ended up stopping off at Rodney and Reenahs.
My energy levels are very low, can barely get out of bed. Hopefully when the radio stops my energy will return.
Many thanks for the offer of a flight, I'll definately take you up on that, although it may be a couple of months before I can fly. Kevin, you might want to plan the trip to Sweden without me and I'll join if I can.
The district nurse is supposed to visit today to change my sub cut pump. It's a needle they place under the skin to pump anti sickness drugs. It works really well for me. Sorry there is not anything exciting to write about, not much happens when you're lying in bed all day. I would recommend this TV series I've started watching called Pysch, it quite funny.
Energy : 1/10
Sickness : 2/10
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