Dizzy Spell

Had my first dizzy spell today. I was getting up from bed to have some lunch and was walking to the living room when I lost all balance. I was trying so hard to keep up right but my legs refused to cooperate. I ended up landing on my arse, so thankfully no damage. I think the radio therapy is really taking its toll on me. I only have 7 more sessions and then the radio is finished. I will then have another 5 weeks of chemo to go.

I'm back in hospital for the whole of next week. Visitors are welcome. How has life been treating you all? I've lost touch with the outside world a little bit. Oh, and thanks for the generous donations for Priya's challenge.

Sponsors Please!

It has been a hard day today. I've eaten something that doesn't agree with me and my stomach is really playing up. I managed to feed my self through the NJ tube in my nose last night, Made a bit of a mess setting it all up, but now I get a few extra calories whilst I am alseep.

I was looking at the Stats on the site today. Well over 700 hits, so thanks all for continuing to read this blog. It does make the days go quicker knowing there are so many people rooting for me.

A very close friend of mine mentioned that she is raising money for cancer research and I was hoping that some of you might be interested in sponsoring her. Her name is Priya and I have known her since my first few days at Uni. You can find out more about her fund raising attempts at http://www.raceforlifesponsorme.org/priyaradia. Priya, I hope you don't mind me telling others about your website.

Once I am recovered from the Radio/Chemo I hope to raise some money too. I'd like to do something now but have been told off by the missus for not resting enough. So now I spend most of the day in bed surfing the web. Not a bad lifestyle and one I could get used to.

Back home in Kent for the weekend

Hello all! It's nice to be back home again. Especially to see Alyssa. I'll be going back to the ward on Monday, but I'm not sure what they have planned for me after that. I think they want to put me up in a hotel for the remainder of the week. Not sure what the rooms are going to be like, I imagine pretty basic. Also I'll probably need lots of visitors as sitting in a tiny room is going to drive me mad. At least on the ward there are other people to talk to.

The ward is very noisey at night. There's a guy who I call Jar Jar Binks (from Star wars) because he sounds just like the character. I've had many the urge to go and thumo him one, especially when he's on the phone at 10pm talking at the top of his voice.

There is also a chap sort of opposite me, who is really not doing very well. He seems to spend the night throwing up. The sound and smell is bad. I feel for him, but he does stop me sleeping sometimes. I plan to get some good sleep this weekend.

I think I'm going to be near London Bridge for the remainder of my Radio treatment (3 weeks).
My weight has stablised at 9 stone 7.5 lbs which is quite low. I'm being fed overnight through a tube to get some extra calories in me. I had a urge for a Spicy Bean Burger last night and walked to Burger King in London Bridge Station only to find out that they do not sell them there. They sell all the other burgers! I might have a Bean Burger tonight to make up for it.

Jays back at Guys

Hi everyone,
Just wanted to give you all an update. Jay's back at Guys - same ward as before (Hedley Atkins Unit, 8th Floor, New Guys House).
He's had an NJ tube put in on Monday, and they've started giving him supplemental feeds through it. He'll hopefully be allowed home for the weekend again, and then either go back in to Guy's or a local hotel on Monday.
You are all more than welcome to visit him at the hospital (2pm - 8pm).

Shirin

Back home

It has been a very hard week. I was almost ready to quit all chemo and radio therapy on Thursday as I was feel so sick. The nausea was terrible as well as the pain. My morale was at its lowest for a long time. Thankfully by Thursday evening the docs had fitted me with a syringe driver which pumps anti-sickness drugs directly under my skin. With in hours I was feeling much better! The docs have let me go home for the weekend but want me back on Monday.

The plan for next week is to fit a feeding tube via my nose to my stomach on Monday. It means I will be walking about with a tube hanging out of my nose. Not a very nice site but it had to be as I am losing too much weight. Once the feed is up and running they are going to give me a room at a hotel on site. I have stayed there before, the rooms are tiny and very basic, but at least I won't have the commute every day.

Had an impromptu party last night when Rodney and Reenah couldn't find baby care and then decided to have dinner at ours. Reena and Victor, who were supposed to be meeting Rodney and Victor came around as well. I just wished I had more energy to spend time with them, I spent most of the evening resting in my room. It was really nice to see them though.


I'm going to chill out this weekend and not do much at all. To be honest I bearly have the strength to sit up for any period of time. Hopefully that will change once the start the feeding on Monday. Fingers crossed this weekend will go smoothly. Thanks for all your comments.

Jay's Back In Hospital

Hi everyone, Shirin here. Just wanted to let you all know that Jay was admitted yesterday to try and sort out his nausea and weight loss. He'll probably be in till Friday.

He's at Guys Hospital (London Bridge), Hedley Atkins Unit, 8th Floor New Guys House.
Visiting daily 2pm - 8pm

I Feel Sick :(

Anyone watch American Dad? It's fantastic! I've watched 4 episodes today so far. I would recommend it to all of you. Also drove my new car today, quite fast and nippy. It's the first time that I have bought a new car.

I've been feeling very sick the last few days. Throwing up lots and not eating very much. Although my appetite is still good. I've also noticed that my nose bleed is getting worse each day. I was zapped by the x-rays earlier today and then met with the dietiton and oncologist who look after me. The were concerned that I had lost so much weight and are thinking of putting a NG tube in from my nose to my stomach so that they can feed me. I'm not looking forward to it, but it beats feeling sick all day. I can only manage jam sandwiches and pizza. Trust me, it gets boring after a while!

Have a busy weekend lined up, with people coming to visit over the Bank Holidays. I hope that I'm well enough to see them.

Weight : 9 stone 10lbs
Sickness : 6/10

I've been nuked!

Well not quite. The radiation they are subjecting me to as part of my treatment is actually high dose x-rays. My appointment was at 2:30pm however, one of the machines had broken down which led to a 2 hour delay! I didn't leave the hospital until 5pm. The procedure was painless and took only 10 minutes. I hope the other appointments are not as delayed. Judging by the rest of the people waiting, it seems common for there to be long delays. My plan is to bring in a box of chocolates for the staff in the hope that they might speed things up for me.

I was in extreme pain most of last night because I ate an apple and didn't peel it. I think the peel had got stuck in my intestines and caused horrific pain. I'd taken all my pain killers but nothing helped. In the end I took some sleeping tablets. Still hurting a little today. I really can't go through that again. As a consequence I haven't eaten today. Not sure what the dietition going to say about that. I don't care at the moment, so long as I'm not in too much pain.